Little setback....

So......you may have heard we are back at Primary Children's Hospital. We were discharged on Saturday, Sept. 1st. We stayed in Coalville until Tuesday where we left that afternoon. We drove to Gillette, Wyoming where we decided to stay the night. we had a scare on the drive, Kaizen turned a pale color, his lips went blue and he was trying to throw up but was too weak. Thankfully they sent us home with a suction machine so we pulled over suctioned him and turned his oxygen up. Since they sent us home with an o2 monitor we saw that his oxygen levels went back up. Thank goodness! Ugh he scared the crap outta us! When we got to the hotel he was still really weak and about 5:00a.m. the next morning he threw up some brown stuff. We were getting really worried as we were packing everything up to head to Sidney.....he was very very weak.......too weak to even cry. He was trying to throw up but was too weak to do that. He slept for over 40 hours straight, so we decided to take him in to the Gillette Hospital where they then decided to put a breathing tube in him and fly him back to Primary's. I flew with my little angel and we arrived here last night.

They are thinking he has the rhinovirus......which they can'treally give him anything for, they can give Tylenol that can help with lowering his fever but other than that they can really just support him with things until he gets over it.  His fever at one point was 102 but has come down to 100.8 it kind of goes up and down a little bit so they are keeping watch. Weare currently staying in the PICU.
I don't have my lap top with me so I am just using my iPad to do the posts for now....so you will have to bare with me if all of this is out of wack......hopefully it even works. I can't scroll down to the bottom to end this post so I will write it here...... Thank you all for your thoughts and prayers! I will keep updating a trying to stay positive! I hurt but I'm not broken! :)

My feelings right now......well they are better than yesterday that is for sure. My heart is still hurting, it's aching, it's sad. The thought of loosing him is just unbearable to me, I just CANNOT handle it. I wish I could just go to bed, wake up and have it all be just a dream, just a nightmare really. It's crazy how just a common cold to us could be life threatening to a little innocent child. It is extremely hard watching your child struggle and not being able to do anything, anything at all to help him.....to lighten the struggle......take away the hurt. I just wanted to take him home with us.....sit in our rocking chair until I rocked us both to sleep.