The car ride there
Aren't we great actresses?
we were bored...
:( he looks soo happy....
I finally got my other half back! He flew in to Salt Lake on Wednesday so I drove to the airport to pick him up. First off, guys that was the first time I have EVER drove to Salt Lake by myself. I have been driving for seven years and that was the first time for me.....something about that spaghetti bowl intimidates me so much that I thought I would be able to go my whole life without ever thinking about driving in it......wrong! On top of that I had to drive Josh's diesel truck which wouldn't have been so bad but I am used to driving my cute little compfortable subaru tribeca. Anywho I got there safe and sound and KZ and I were so happy to see him!
My birthday was the 16th.....the big *2*3*! We celebrated by going Zip-Lining at the Canyons in Park City. O my goodness what a thrill.....overlooking the big valley was definitely exciting!
I will keep updating.....:)
Some random pictures......
all geared up
the practice zip line
on our way to the top
overlooking the valley
I am in the process of creating a bucket list....things I want to accomplish and experience before the good Lord decides it's time for me to go home. I plan on sharing it when I have finished the list. But one thing that was on there was to zip line.....so check! Next up.....skydiving.....yikes! We had an early dinner at Red Rock cafe and then went to my moms for some cake and ice cream.....courtesy of Kristina....thanks it was soo good! Also Kassidy got me a gift from a place called Lush......
I love them.....thanks Kass!
And now for the update on KZ.......we are in the hospital again. We originally came for a check-up on Friday with one of the doctors and when they weighed him he actually weighed like an ounce less than when he was here 2 months ago....which is very odd because he isn't throwing up anymore and he is eating more so she felt that she needed to admit us and figure out what is going on. Also it would be better if he was admitted so the neurologists can look more into his spasms......the spasms have definitely decreased but they are still happening....he has been on the steroids for exactly a month as of yesterday and that is normally how long they leave them on it before they start winging them off it.....so they are going to try that now and if the spasms get worse or still occur they will try another anti-siezure medicine. His EEG's are still not showing siezure activity. They just keep saying he is so hard to understand......things that are happening to him they have never seen before.....this litlle boy has even the smartest doctors puzzled. They told us they aren't thinking it is looking like cerebal palsy so much anymore.....I mean he isn't doing the same things or showing the same signs as a typical cerebal palsy patient so......we are here doing a ton more tests and try to get him to gain weight. He is almost 10 months old and only weighs about 15 pounds.
We may be here for a few days.....could be 2 weeks....it all depends on him. So far they have done an x-ray on his tummy and his back. On his tummy to see if he is constipated which the results say he is but not much. And the back x-ray told us he has a little bit of scoleosis but not much to be concerned with. He has had his blood drawn a couple times. He has to be on a 1/4 liter of oxygen when he sleeps becuase his oxygen level goes down a bit. They are planning on doing a swallow study on monday which what they do is have him drink some stuff with dye in it while being x-rayed to see where his milk is going and if he aspirates it at all....he still has a lot of reflux so they think maybe he is having trouble getting the milk down the right pipe which could be the reason he isn't gaining weight.
We are really hoping to get more answers this time......and hoping he can start eating better and gaining weight so that he can start progressing and reaching his milestones. I have a good feeling for this time's visit........I am confident we will be able to figure him out.... :)
I will keep updating.....:)
Some random pictures......
eating at Village Inn
They have to eat too.....so thankful for their services!
He is my life.....nothing less!
I just love this boy.
No comments:
Post a Comment