Wow! That was rough!! We just got home from a three night four day "getaway". I wish it would have been a nice relaxing getaway spent on the beach or somewhere peaceful but I guess a hospital will have to work for now.
We left Sidney Wednesday night and made the four hour drive to Billings so we could be there for Kaizen's
EEG appointment early Thursday morning. We were instructed to keep Kaizen awake from 2:00am to 8:00am. His appointment was at 8:00a.m. and they wanted him to be very tired so the test could pick up anything abnormal.
Let me just tell you, trying to keep a baby who normally goes to bed at 9:00 or 10:00 every night and wakes up at about 7:30-8:00 every morning, trying to keep him awake is almost impossible! I got up at about 2:30..........hey the snooze button was calling my name........... and fed and changed him, then the long process of trying to keep him awake begun. He was soooo tired........
Josh woke up at about 5:00 to "relieve" me but I just couldn't sleep so we both stayed up and tried everything we could to keep this cute little baby awake.
We tried taking him outside, wrapped in a blanket, so the air would wake him up a bit. We tried talking to him, making funny loud noises, giving him a bath, putting him in his johnny jumper, literally anything and everything.......but..........he refused to stay awake!
So we ended up letting him sleep for 22 minutes to be exact, that little nap gave him some energy.....a baby power nap we called it.
Finally 8:00a.m. arrived and he could finally get some rest.....
He fell right asleep!
Please know and understand that this test does not hurt him in any way! Basically there are a whole bunch of wires that they attach with some sticky gel and then tape over them so they don't come off, everything comes off really easy with the help of a little alcohol pad so it doesn't pull on his tiny little hairs.
They then wrap this gauze around his head so in case he does wake up and move around, the wires don't come off.
The pictures make the test look worse than it really is. This is his fourth EEG, and let me tell you, when they gave him his first one when we were in Great Falls I cried when I saw him like this, I absoulutely hated it!! I am hoping this will be the last one. So far every test has come back with no siezure activity and we haven't got the results for this one yet so we will see.
The test was finished after one hour and they came and took everything off and we were headed back to the hotel for another feeding and some rest for all three of us!
But after our nap we decided to hit the mall for some shopping!
This is my new favorite store!! They have so many cute clothes!
At Dillards trying on some hats! He's so cute.
This store called Country Cottage looked like they had so much fun stuff. I didn't go in, but it sure did look inviting. Next time, my friend, next time.
Then we went to Red Lobster.....yumm!!
He really was happy.....I dont know what he is trying to prove hahaha!
One of the outfits I got.
Flower top: Romy
Little jacket thing: Vanity
Capris: Vanity
Shoes (you cant see): JC Penney
Sneeking a picture lol!
I was camera happy......it was becoming a problem.
Friday was a new day.......and not an exciting one! It was his MRI. For this we were instructed to not feed him anything after midnight, so I gave him his last bottle for the night at 11:00 p.m.. After we checked in at 7:30 a.m. and after waiting for a little while, we were called back to get Kaizen ready.
The anesthesiologist came in and talked to us about the plan. That he would be sedated of course, have a breathing tube put down his throat, and have to have an IV. Then we headed back to where he would be sedated. I hated the fact that he had to be sedated......I loathed it!! I went in the room with him and they put the mask over his mouth. He didn't like that mask....not at all. I was holding his hand and could see and feel him start to get tired. My eyes filled with uncontrollable tears.........I couldn't handle it! They told us we could leave, and I was thankful for that. I don't think I could have handled watching him be fully "put to sleep".
They told us the MRI would be about 45 minutes and then he would need to be in the recovery room for probably 30 minutes. Josh and I sat in the waiting room........him on his phone, me on my ipad trying not to think about what was going on just a short way away from us. An hour went by, then an hour and a half, by now I was starting to get worried. Almost two hours later, the nurse came running out waving her hand for us to come, my heart sunk. Then when I got closer to her, she smiled and I felt a little better.
When we saw Kaizen he was crying so hard. This is very abnormal for him as he hardly cries........ever! He was not happy with what just happened. I took my precious crying angel in my hands and held him close to my heart.........it took him a little bit but he finally calmed down and stopped crying.
The anesthesiologist told us that there was an episode when he was in the MRI. With 9 minutes remaining in the scan Kaizen was trying to breath on his own......fighting against the breathing tube. They had to pull him out and hand ventalize him so his heart rate would come back up. Within 20 seconds it did and he was fine. They finished the scan.
We were in recovery for about two hours because they were concerned with a few things. His face was really really red. His pupils were dialated to huge and were not reacting to light that well and his hands were shaking. He had a little bit of a fever but not high enough to explain why his face was so red. He would not eat anything and would keep choking when we did try to feed him.
I did not like seeing my baby like this! Not at all!
Daddy's turn to feed. He had the magic touch!
Thankfully though with time he started going back to normal. He started eating and not choking. His redness started going down and his hands stopped shaking so much. Finally his pupils started reacting to light. They said that the reason his eyes might have dialated was becuase of the medicine they put in his IV when he had the episode in the MRI to help get his heart rate up.
They finally discharged us and we were headed back to the hotel. He still wasn't back to his normal self but they said that was normal after sedation.
This morning Kaizen was back to his happy normal self. Smiling and laughing at his crazy mommy and daddy! Not shaking anymore and not choking! I don't think we will be having another MRI for a long time, I really didn't want it done this time but the doctor wanted to check on some things.
We haven't got the results for the MRI yet either, but we should know more next week! I will keep things updated!
